Inspirational Exeter volunteer wins national charity award

An Exeter man’s volunteering work has been recognised by national charity Epilepsy Action. Simon Privett received the Epilepsy Action Volunteering award in a presentation at the Exeter’s support group Christmas meeting (Wednesday 27 November). 

Simon, 37, has epilepsy and is a passionate advocate for people living with the condition. He has set up and manages two extremely successful Epilepsy Action coffee and chat groups in Exeter and Torbay. More recently, he has launched a third support group at Exeter University. He knows the importance of helping people to stay in touch beyond the group meetings and runs active Facebook groups. He also delivers epilepsy training in University departments and local businesses and is a member of Epilepsy Action’s research network. 

Accepting the award, Simon said: “I’m completely humbled to be honoured with this award. There are so many people across the country who work to help others with epilepsy. Therefore, to be nominated for this award was an honour in itself and I am thrilled to have won it. I would like to dedicate this award to those who I have helped and those who we have sadly lost to Epilepsy. There is more work to be done spreading awareness and I am keen to continue in my work.”

Simon was nominated for the award by Epilepsy Action’s South West manager Mark McDaid. He said: “I believe that one of the major motivations for Simon’s volunteering is his own experiences of living with epilepsy. As Simon says, “I want to inspire people. I want someone to look at me and say: ‘Because of you, I didn’t give up’.”

Mark added: “Simon is particularly talented at engaging with outside professionals and organisations, such as the ambulance services, and bringing them into the groups. He has developed strong links with researchers at Exeter University and has ensured the voices of people with epilepsy are heard.”

Lottie Pagram has epilepsy and attends Simon’s Exeter group. She describes him as someone who has a great understanding about the condition and is fantastic at supporting others who are affected by epilepsy. “He is dedicated to making life for people with epilepsy and their families better. He is welcoming, friendly and as someone who has epilepsy, he is very understanding. It’s thanks to Simon’s encouragement that I have become a volunteer for Epilepsy Action and also discovered that I am not alone.”

The Epilepsy Action Awards celebrate the UK’s epilepsy heroes. They recognise and celebrate those who have made a real difference to those with epilepsy in the UK. A total of 11 awards will be presented across the country during November, honouring the work and commitment of volunteers, fundraisers, schools, employers and healthcare professionals.

Philip Lee, chief executive at Epilepsy Action said: “We’re delighted to acknowledge Simon’s tireless commitment to volunteering by giving him an Epilepsy Action award. This award is a deserved tribute for his efforts and successes. As a charity we rely on the support of people who are committed to improving the lives of people with epilepsy. These awards reflect the wonderful efforts of the recipients and mark our appreciation for their passion and commitment to the support of people with epilepsy.”

Epilepsy affects around one in every 100 people in the UK alone and 87 people are diagnosed with the condition every day. Each year, Epilepsy Action directly helps over two million people through a range of services, including its Epilepsy Action Helpline, freephone 0808 800 5050, support group network and award-winning website, epilepsy.org.uk

Simon’s support groups meet as follows: Torbay – second Wednesday of the month 7.30-9pm at The Abbey Sands Hotel, Belgrave Road, Torquay (no meeting in December, next meeting 8th Jan 2020); Exeter University – second to last Wednesday of the month, 6-8pm La Touché Café, Building One, Streatham Campus, Exeter University (no meeting in December, next meeting 22nd January 2020); Exeter – last Wednesday of the month, 7.30-9pm, Café Rouge, Princesshay (no meeting in December, next meeting 29 January 2020).